Crotchety makes a good point. This is a time of regression thinking - and depression policies - in the US. They anti-life and anti-women forces in the US are having a heyday and American society is suffering for all of the resulting bad policy. There was a time it was said in jest, "the 1960(s) were good to him, to her." Now these 1960s radicals and potheads, and their 40 something follow-ons (with their own college era drug probelms and radical, anti-life, anti-person, anti-woman agendas) are making the rules and recommendations for the USA from seats of power in the Big Government, Big Medicine and Big Pharma teaming and America is deteriorating. Choose life. Follow your own counsel, not the media message. Vote out all incumbents in 2010. And 2012.
I too had borderline ovarian cancer at age 24 and had everything removed under anesthesia with no choice. I am 43 years old now. There are certainly pluses and minuses. Not having a period or mood swings are nice. I have not broken any bones yet but I do have osteoporosis. My sex life has been impacted because I have chosen not to take hormones orally. I do take estogen vaginally and that has helped tremendously. After the cancer I was grateful to be alive and I was grateful I had two babies that were going to have a mother. My boys are grown and I can not imagine their life without a mother. My surgeon was female and I remember going into surgery with her hand on my face saying it was going to be alright. I do not consider her a butcher. Doctors make the best decisions they can based on the information that is in front of them. I worry about the effect of no estrogen on my heart and my urinary tract. I also worry about broken bones. Every day I thank God that I was able to live. Others need to be grateful for what they have........
After the birth of my daughter in 1990 I had cervical dysplaysia. The dr used a procedure where he froze my cervix. I didn't go every six months like I should have. I started back in 1994. He started the cervical freezing again and I finally asked him after three times, how many more times before you do a hysterectomy? He checked around and ordered a cold cone biopsy. It detected a pre-cancerous cervix. They ordered surgery and when they went in, my uterus was cancerous. Had I not pushed the issue, I have no idea what would have happened to me. 15 years later I am still cancer free.
I wish doctors would stop lying to women about castration (yes removing the ovaries, female gonads, is castration) I lost both my ovaries because of a borderline ovarian tumor (a tumor that had a very low potential of becoming cancerous), and my uterus, and guess what? My life is a total Hell and I spend every day in pain, lost 3 inches off my height, and my life is awful.
Women, if some doctor says you need your ovaries removed LEAVE! These quacks don't know what they are talking about. It hasn't been proved that anything causes cancer other than bad luck. What happened to me while I was under anesthesia was criminal. Don't become another victim of misogynistic doctors.
I think that if some doctor said removal of the testicles would decrease the chance of prostate cancer in men that there would be a public outcry.
Thank's for your advice kolynna, I'm sorry you have suffered so much. You're right, removing a womans ovary is the equivalent of male castration. I have a large ovarian cyst and fibroid tumor and was told by a (female) gynecologist that I should have a hysterectomy, and a left salpingo oophorectomy, without EVER giving me any other alternative treatment options which I had to find online myself - like a cystectomy to remove the ovarian cyst and preserve my fertility by making every attempt possible to save my ovary or Uterine Fibroid Emobolization to destroy the fibroid tumors and leave my uterus intact. I thought if I went to a female doctor, she would be more compassionate and understanding of the fact that I don't want to lose any of my reproductive organs - boy was I wrong! There is an extremely small chance I have ovarian cancer and yet I can't find a doctor willing to do the less radical, out-patient laparascopy surgery. Two different doctors want to perform a laparotomy, which would put me in the hospital for at least three days and force me to take a month off of work, which I definately cannot afford. According to information I found online and at the library, some potential life-long consequences of ovary/uterus removal are: surgical menopause, increased risk of coronary heart disease, cardiovascular disease, acceleration of osteoporosis without hormone replacement therapy, changes is sex drive/sexual dysfunction, psychological difficulties, severe hormone imbalance and the risk of uncontrolled bleeding and organ/nerve injury during surgery. As far as I'm concerned, women should get ten different opinions if they have to, this surgery should not be taken lightly!
Kolynna - Sorry you have suffered so much but please DO NOT tell people to "LEAVE" if a doc advises them to remove their ovaries. A patient should ALWAYS get a second opinion! And, speaking only for myself, I'd rather be 3 inches shorter and deal with daily pain then have cancer and have to go through the ABSOLUTE HELL of chemo, radiation and possible surgeries.
I'm sorry some of you have gone through a hard time after a hysterectomy. To Suzie, they might not want to do it by laparoscopy because it is easier to remove everything if they cut you. They might cut into what might be cancer and "spill" the cancer. They actually sliced her tumor and cells fell into the cavity. That happened to someone I know and she died when she was 56 years old just a couple of years ago.
I had a total hysterectomy at 51 years old. I am now 56 and it was the best thing I ever did. No more pain, no more terrible long periods and I am much more fit than before. Every woman I spoke to before I had the surgery said it was the best thing they ever did. My sister had it done at 39 and she is now 64 and doing fine. Its not as bad as they make it out to be.
You can still get ovarian cancer in the lining of your stomach. Very rare though.
Suzie, I hope you get to have all the babies you want. Shortly after my son was born, 19 years ago, I began having very heavy and painful periods. The flow was so bad that I thought I might lose my job for spending too much time in the bathroom on the first few days of my period. The pain was very severe and the flow so heavy there were clots the size of golf balls. My doctor convinced me to have my uterus taken out. After all those years of 10 day long periods, I felt so free. I've read that when a woman has her uterus taken out she doesn't enjoy sex as much. That's so not true! I do still have my ovaries so I have plenty of drive. My husband and I don't need to use any birthcontrol. How great is that!
I had a hysterectomy and had my ovaries removed 5 years ago. Like Woodyspond said, IT WAS THE BEST THING I'VE EVER DONE!!! That monthly problem became weekly and was running my life. I also had 3 hip replacements 10 years ago. The hip problems ruined MY life. I struggle to walk short distances because the first doctor had very minimal surgical skills. When he put me back together after detaching my femur from my pelvis, I was deformed. I found another doctor who gave me back a reasonable life. I used to be a very capable person, now I just get by thanks to hip replacement surgery. I hate to start anything, because I'll usually run into some problem that'll prevent me from finishing - especially if I have to keep getting up to get something. Everything just takes longer. So, of course, I was scared about the hysterectomy, but one week afterward I was a happy camper! If I could, I'd be tap dancing now thinking about how much better off I am now in that regard, at least. If you need a hysterectomy and don't want any more children, I will certainly support that. It's a walk in the park compared to hip surgery.
I sure wish I had insurance and could afford follow-up screening for either one of my problems. I had severe abdominal pain a few years ago and had an MRI. They charged me $5,000 for the MRI alone, plus another $3,000 for the other services performed. I won't go back. That was a trumped up charge. If you have insurance, the insurance company only has to pay $2,000 for those procedures. That's where the medical industry gets criminal - triple charging uninsured people who are unemployed and broke - kicking you when you're down. With the exception of a few good ones, many of them are greedy and heartless.
Obviously you've had to endure a terrible experience, and I'm very sorry for that. However, it is irresponsible to tell women they should ignore a doctor who tells them to remove their ovaries. In 2001, doctors found cysts on my mothers left ovary, and recommended removing both. She decided to go against their recommendation and only had the 1 removed. Then in 2006, she was diagnosed with ovarian cancer (stage IIIC), and had to have a hysterectomy, as well as an appendectomy because the cancer had spread.
Luckily, because of an experimental treatment and wonderful doctors, my mom is still with us. But unfortunately most women with that stage of ovarian cancer are not nearly as lucky. My mom made a decision years ago that could have cost her her life. Now I'm not saying that all women should have their ovaries removed at the first sign of a problem, I'm just saying that everyone should get all of the information they can before making such an important decision.
A relative of mine had a complete hysterectomy at the age of 45. She died of ovarian cancer at 64. Apparently, it didn't help her to have her ovaries and uterus removed....
It is impossible to judge whether it helped her or not without more facts. But if there was cancer or pre-cancer that caused her doctors to recommend that surgery, it may well have helped as she lived another 19 years after her surgery. I have known young women, sometimes with young children, who died of deadly forms of breast and ovarian cancer that were not caught in time (sometimes because the woman with symptoms decided not to seek help until it was too late). Sure, prophylactic removal is an idea for which each at risk woman must evaluate what she fears most (the surgery or a higher risk of cancer). But I know women with bad family histories who have set themselves free with the prophylactic surgeries and have no medical complicatioins.
I had a complete hystercetomy in 2008 for cervical cancer. I also have a strong history of breast cancer in my family. I'm very happy that my risks are lowered. I realize that some people have negative results from their srgery, but that hasn't been my experience. Don't warn all women against a potentially life saving surgery because you had a problematic outcome. Many of us are leading completely normal lives after our surgery. Every woman should weigh their options and make their own decisions. One anecdotal experience does not paint the whole picture. And to paint doctors as misogunistic is unfair. These are results of a scientific study, not some creepy doctor who hates women. Get a grip.
Double Amen! I too have had my ovaries removed due to cancer and have NO regrets. My life is very much as it was before.
I'm sorry that you are suffering, but it is irresponsible to say that ovaries should never be removed. Drs hate women so they are taking out ovaries left and right? Get real.
It's up to each woman to do research and get as multiple opinions when facing any kind of surgery. But sometimes it is necessary.
I had a complete hysterectomy at the age of 53 now i am 77 year old,,,,so far so good I never had any problem,,,sorry to hear you had a bad experience..we don't have the same reaction to that....some are o.k. some are not....
I had a complete hysterectomy at 45. Best thing I ever did. I had lost so much blood from having extremely heavy periods ever month that I was anemic. Also, my hormones were all screwed up from the cysts and caused a nervous breakdown and I developed OCD. Now I can think straight and I am feeling great! Never felt better! Went thru menopause with very little problems. Did not and do not now take hormones. Suffered thru the hot flashes and now avoid things or limit things like carbs and alcohal that can bring them on. I haven't lost any height and have no problems. Now I am dieting, excersing and losing weight and I feel great.
Women should never think taking anything out of their bodies is a good idea and definitely not perfectly good ovaries. It is ridiculous to ever remove a part of the body unless absolutely necessary. Shame on this type stupidity. Going right into menopause is not so wonderful when you are in your 20s, 30s or 40s. Let your body do what it is supposed to and keep those lovely ovaries.
I watched my mother die from ovarian cancer when she was 56. I vowed then that when I was finished having my family, my ovaries would go! When I was 53, I had a complete hysterectomy and I have never regretted it. I was starting menopause anyway and had no plans to have more children (and would have been too old then at any rate). I have lost some height, but I have a scan done regularly to check for osteoporosis and "so far, so good". All you have to do is watch somebody die from ovarian (or breast) cancer to know that this was not a route you want to take. My mom ended up with a colostomy and months of pain and suffering before she finally succumbed to the disease. She went from being a vibrant "young" woman to a zonked out "skeleton" in months after three surgeries. She was kept comfortable with a morphine drip which just snowed her under and deprived her of any meaningful existence for the last few months of her life. Make your own choice, but removing my ovaries was the right choice for me.
I had a total hysterectomy at age 27 due to ovarian cysts that had already claimed one ovary. I took HRT off and on for several years but stopped at age 55, when most women lose their ovarian function anyway..I am now 59. So far the only problem I've had is a dx of osteoporosis and 3 fractures, wrist, rib, and foot, all 15 or more years ago and I've lost 1/2 inch in height. My mother who is 85 also has osteoporosis and she did NOT have a hyterectomy....I take 1500 mg calcium w/ phosphorus and magnesium and 5,000 IU of Vit D daily. I also am very active and do lots of weight bearing exercise.
When my mother was diagnosed with breast cancer, my dad (a doctor) said that my sisters and I should just have our breasts "cut off". "They are just mounds of fat and unless you're going to breast feed for the rest of your life, you don't need them. They don't serve any real purpose." Yeah, sure, and guys buy playboy for all the fantastic literature! My response to him was that we had all voted and decided that he didn't need his testicles anymore (since he wasn't going to father anymore children, they don't really serve a purpose). So, if he'd be so kind as to meet us out back with the pruning shears and a fifth of vodka (have to sterilize the shears some how). :-S
My mother was treated like a piece of meat. Her breasts were just treated as garbage (parts are parts, as Dad used to say). The whole thing (surgery, treatment, and even her death) was horrible. She was severely mistreated by those who were supposed to help her. I told my husband that this type of treatment would never be allowed (if I were to become such a patient). I go into surgery with breasts, I come out of surgery with breasts (removal and reconstruction - same bat time, same bat channel). They must look natural and I must be able to feel it when my husband touches me. That's the rule for my body. There will be no showing up for an appointment on time (or early to fill out paper work) and having to wait 3 hours for the doctor to show up (only to be told that I would have to reschedule). Who's time is more valuable, the doctor or the person with the potentially fatal disease?!? I can't tell you how many times it happened to my mother. At one point, I sent the Dr's office a bill for the time that they had wasted (if you didn't show for your appointment or canceled at the last minute you would get a bill). They laughed in our faces at that. I have no respect for those who treat cancer patients with so little respect.
JW-421212, I am so sorry to hear about the horrible way your mother was treated, and your dads' insensitivity to you and your sisters. My mom died of colon cancer, and my dad took such loving care of her for the two years she was sick. I wish your mom could've had the same treatment. It sounds like you have a loving relationship with your husband though, so I am happy for you about that. God Bless You!
JW -- I hope your life works out for you based on your demands. Maybe it will. But some women with a strong family history of breast cancer get it themselves, and others want to do what they can to prevent it. Your father, who was losing his wife (and it sounds like he'd have rather had her without her breasts than to lose her) may have known something about your and your sisters' risk factors and not wanted to lose you, too. Again, your story doesn't contain enough facts to judge, but for some women with a family history the risk is high.
I had breast cancer at age 52 and have been blessed with a wonderful caring oncologist. I wouldn't say that he never keeps me waiting, but when he gets to me I have his full attention, and always have had. He devised a chemo protocol based on the best science at the time because he wanted me to live, and he was very concerned about anticipating and preventing side effects. I did not have the other breast removed despite a high risk of eventually having a "mirror image" cancer in the other breast. But I do have mammograms and MRIs every year, plus tests for ovarian cancer. Since I've gone through the choice of whether to do preventive surgery, I can truly understand why some women would make that choice. A year ago something funny showed up on my breast MRI in the mirror image location so I had to have an MRI-guided biopsy, which fortunately was benign but it was very unpleasant, and the worry until it was over were dreadful. I made the right choice for me, not to have prophylactic surgery, and guarded watchfulness -- coupled with a constant worry of it returning in the back of my mind -- is simply part of the consequences of tha choice. I would never judge a woman who wants to cut her risk of having to go through with that by having prophylactic surgery.
And as to doctor waiting times, the best doctors are often busy, and cannot control whether they have unexpected emergencies. If you want a good doctor, you have to take him or her as they are, and if you can't accept their style you should find a doctor with different priorities. One of my doctors is frequently running 2-3 hours behind schedule because he is good, and in demand, and he takes the time with his patients when necessary. People in his waiting room form support groups waiting for their appointments. :) But I know the office runs late, and I know I want that doctor because he's wonderful and he'll give me extra time when I need it, so I take work to do while I wait. Don't assume that good doctors can make their practices and the needs of their other patients run on schedule so that you never have to wait.
Sounds like you had some bad experiences, but I don't quite know why you are so angry at your father. It sounds like he has his priorities straight to me! Seems he cared more about a woman's life and health than whether she looks like a playboy model! Maybe you need to find a man who cherishes you for who you are and not your body parts that are, after all just body parts, which have no bearing on who you are as a person! As a woman facing the possibility of reducing my breasts, I am greatful to finally have a man who supports me and could care less whether I have breasts or not! He would rather that I be healthy and not in pain than looking like I should be working at Hooters!
While I understand that you had bad experiences, which is too bad,... maybe you need to give your father a break. Maybe he recognizes that a woman is worth more than her body parts!
It is sad that some people have genetic issues that cause cancer, especially BRAC. If you are at risk, male or female, and you enjoy your life, I would highly recommend that you take whatever action is neccessary to understand what your options are and always get a second opinion. Unfortunately, the BRAC gene is real....real deadly, especially when it appears in the ovaries, and is not caught early. My lovely wife was lucky to have had it discovered when it was still at stage 1. After removal of both ovaries, she had a 90% chance that she would never get it again. Well, she was one of the unlucky 10%. She has had two reoccurences. Life is good, but always looking around the corner. Her two sisters also had the BRAC gene, removed everything, and no cancer! So, don't be ignorant, know your body, take care of it and get it checked regularly, especially if you are in a high risk category.
My mother died of ovarian cancer at 79.....she had a partial hysterectomy when she was 39. My Dad, my sisters and I cared for my Mom for 2 years after her surgery and through the horrible chemo therapy she had to go through. Finally, she died at home; hospice helped us in her last days. I had a partial hysterectomy at age 40 (prior to my Mom's cancer); I'm now 57. Each year I get a CA125 test and an ultrsound of my ovaries, but it still scares me that ovarian cancer may occur for me. Mammograms annually are a must too!
I lost my mother to ovarian cancer in March of this year. She has a partial hysterectomy years ago, but for some reason her ovaries were not removed. She was diagnosed in May of 08 with ovarian cancer, had surgery and then chemo and was doing well, until last fall when her CA125 started climbing. She went back for more chemo which helped at first, but then again her numbers started climbing and at the end of January they told her there was nothing else they could do although she would have tried anything. She died at my house also under hospice care. I am 47 and have had the CA125 test for the past two years and my doctor said if there is any significant change, she would recommend having my ovaries removed. I have a 16 year old and 15 year old and want to see them get married and have children of their own, plus the fact that I don't want them to have to take care of me and see me suffer like my mother did. It was a slow, horrible and painful death that I wouldn't wish on my worse enemy.
Five years ago (at age 49) I had a large "precancerous" tumor removed, along with my ovaries and uterus and cervix. Although I had complications right after the surgery (necessitating a 2nd sugery, as well as 8 days in the hospital), I can honestly say it was the best thing that could have happened. I had had problems on and off for about 5 years prior, and those were GONE. I do take HRT, have since the day of my surgery, and have had NO problems with it. I exercise (cardio as well as weight bearing), never gained weight, didn't lose any height. And I DID have a 2nd opinion.
Wow your story sounds just like my moms. She Had everything removed for the same reason at age 50 and is now almost 70. No bone loss and a very healthy heart.
Reading this article, it was like reading a synthesis of the different doctors appointments my wife and I have had over the course of the last six or seven years. My wife carries the BRCA2 gene, linked directly to ovarian and breast cancers in women, and prostate and possibly colon cancer in men. Her father died of prostate cancer in 2008 and three of her six aunts have had breast cancer, two have had colon cancer, and ovarian problems are rife on her father's side. My wife is 29 now and, following a second operation to remove suspicious cysts in and around her left ovary, they decided, given the circumstances, to remove it, announcing (once again) that they should probably do the same thing for the other side by the time she turns 40. We're definitely on board given her family's health history. As for prophylactic surgery for breast cancer, my wife doesn't think it's the best option for her. But, again, that issue is a very personal one.
My question to the person railing about losing height and likewise having all sorts of other health issues is this: would you rather be dead? Honestly. Give the doctors a break; they aren't miracle workers who can cure any ailment simply with a swipe of the scalpel. They are guided by the best scientific clues available to them. Unfortunately, side effects are common for just about any invasive procedure. I'd say count your blessings. Have you ever seen someone die of ovarian cancer? We've known three women, two of whom were somewhat close to the family. It wasn't pretty.
Of course, you should always get a second opinion. My wife has about ten doctors who work with her on a regular basis and they all share information after each appointment. But if we're not satisfied with an answer, we can always find somebody else to see us interim.
cut the crap. Your video link was full of dangerously misleading fallacies. Cancer rates are "lower" in olden times and in "traditional" societies because life expectancies were dramatically shorter and an unknowable percentage of those people who die quietly of "natural causes" in some hut somewhere at the age of 52 are in fact dying of undiagnosed, untreated cancer. Because it was never diagnosed (specifically b/c they have no access to a doctor who can diagnose it), it never makes it into the statistics and thus the recorded rate of cancer in historical times and in third world settings is incredibly inaccurate. Even in our own country's relatively short history, causes of death have been officially recorded as everything from evil spirits to masturbation--we will never know how many people died of cancer. Life expectancies stayed fairly steadily low throughout history until modern medicine hit the scene and now it has almost doubled in the past hundred fifty years. I know that's inconvenient for the crowd that wants people to think that life was all peaches and roses in stone-age societies that relied on "holistic medicine" and hunter-gatherer diets.
No internet fad diet can cure or prevent cancer. Period. This online junk literally gets people killed. People who are sick, desperate and scientifically illiterate find this kind of stuff online and then go against medical advice, possibly risking their lives. I knew a person whose mother had advanced cancer but would not see a doctor. Instead she insisted on giving herself very dangerous coffee enemas because she read about that as a natural cure online--boy did she outsmart "the system"! She smirked about the evils of western medicine all the way to her coffin unfortunately. I'm a vet. Every single week I have patients who have been badly injured because their idiot owner found some kind of fad "cure" for something online then comes into my office simultaneously desperate for me to save the day while being openly hostile towards advanced western science/medicine. The latest happened to be a very sick dog whose owner had found some "holistic" cure for her dog's GI problems that involved feeding their dog grapes (which are toxic for dogs). She was convinced that toxins in the dog's colon had to be naturally cleansed using some special diet that some quack posted on an internet site somewhere (similar to Cut the Carbs btw). I had to argue with the owner for a long while--she was adamant that since grapes were natural they couldn't be toxic whereas tests I needed to do and medicines I needed to prescribe were somehow poison....she left in a huff, smirking about how stupid I must be and saying she needed to see her herbalist about this....she pushed the dog from mild constipation into acute renal failure b/c of something she read online and I'M the stupid one??? I guess people who irrationally trust their lives to internet quackery deserve what they get, but it saddens me when pets and children are harmed by those idiots' decisions.
To the people suffering with tough choices involving cancer: PLEASE seek fully accredited medical care and get second opinions. Find a doctor who will help you get the information you need and who makes you feel "heard". And PLEASE do not think home internet "research" is a substitute for the years and years of intense training each of your doctors has gone through or the decades of well-funded large-scale clinical trials and research that have been published. Dr. GOOGLE is not your friend!!! The "natural" supplements industry is completely and totally unregulated and has virtually no scientific research behind it. There is nothing good/holistic/superior about hucksters selling stupid ideas and unregulated bottles of god-knows-what to sick people. It's evil.
Don't know if anyone else has explained this, but... during gestation, when your sex is determined - if you are to become a boy, your "ovaries" are your testicles... and if you become a girl... then vice versa. If you were a boy and your testicles were cut off, that would be castration... therefore, removing your ovaries is female castration.
I, too, fought with doctors for years who wanted to perform a hysterectomy on me because I had fibroids. There was nothing else wrong with me and I was in no pain. I got THREE opinions - including a doctor who, after I told him what I had been through, told me "Some people are not comfortable having some people as their doctors... I am not comfortable having YOU as my patient." (and yes, that is a quote) Not sure what it was I told him that made him say this - except that I did not want to have a hysterectomy over some fibroids when there was nothing else wrong with me. That went on for years till I finally found a doctor who would listen to me. He knew a lot about alternative medicine and never ever pushed me to have a hysterectomy.
In the long term, I fully believe waiting saved my life. I developed Non-Hodgkins Lymphoma in 2001 just before my 50th birthday. As a result of this I did have to have surgery which removed 2 tumors, 12" of my small intestine, and all my female organs. However, because of the fibroid which needed a large blood supply, and cancer being a blood borne disease, the only organs (or other parts) in my body which were affected by the cancer were my female organs (which I could afford to lose under these circumstances). So telling those other doctors "No" in the end, saved my life and made my cure from cancer easier. I am now 8 years out from finishing chemo and my oncologist has pronounced me "cured".
However, having the hysterectomy did have a lasting effect on me and if the choice hadn't been taken away by the cancer I still wouldn't have one unless there was no other way. It is a known fact most doctors (OB/GYN) are looking for an easy way out for them - not their patients. I saw this during my time when I was fighting to keep my female organs. It is easier for them to have you go thru the surgery. It is not necessarily better for you. I question this study because it is vague (read the article again and you will see what I mean). It clearly states "The study was observational, meaning it can't prove one choice was better than another. Other factors could have caused differences in the women's cancer rates." So what I get out of this is doctors are looking for a way to prove to women what the doctors want is not necessarily in a woman's best interests. For that reason I tend to agree with the person who told women to "run" if they are told to remove their healthy ovaries. I would at least try to find a doctor who will listen and not be patronizing. OB/GYN's are developing a notoriety for an over abundance of surgeries that are not necessary. Look at the rise in C-sections. Most of them unnecessary, but the Dr's do not want to have to get up in the middle of the night or miss their golf games. It is ridiculous. And yes, if this were happening to men, there would be an outcry.
I think the other women (and myself) are just trying to say... do not always believe EVERYTHING your Doctor tells you if you feel it is not in your best interest. Read, be informed, even if it means a doctor has to tell you he "doesn't feel comfortable with you as his patient". That is a red flag. Heed it. And the person who suggested going to the Hers Foundation website was definitely "right on the money". Do it. It is enlightening when it comes to female health.
The testicles in men produce testosterone. Ovaries in women produce Estrogen. Testosterone in men makes them grow body hair, have deeper voices, stronger muscles and bones and creates sex drive. Estrogen in women makes them develop breasts and hips. It protects their hearts and bones and allows them to menstruate, conceive and carry a baby.
Take either away, it can cause many problems. Some people never notice the missing hormones.
I'm sorry so many of you have had such horrific experiences with cancer diagnoses and treatments.
I am almost 45 yrs. old and since the age of 32, I have been a volunteer in a research study (University of Kentucky) to determine the possible genetic links associated with ovarian cancer. Both my aunts (maternal) have survived ovarian cancer and the related women on that side of our family also participate in the study as we are naturally concerned about one day developing cancer.
I plan to have the BRCA test and if I possess the genetic mutation, I will happily "donate" my ovaries, especially if doing so will prolong my otherwise very happy, healthy life.
While it's possible that our enthusiasm is premature , I find medical progress of this nature to be positive and encouraging.
I was diag with stage 3 breast cancer at the age of 27.. My doctor has not removed my ovaries, but I do get a shot of zoladex every three months to surpress them. I am 8yrs free of cancer. I also had both my breast removed and had reconstruction. I am very happy with my results and my treatment. I do not feel like I was mutilated, and dont miss my breast at all :) My daughter will get tested for the gene when she get older and I as her mother and a survivor would rather she remove her ovarys and breast. Life is so much more precious than your parts of your body that could eventually kill you!!!
This is the biggest LIE ever more money for surgeons! While the women suffer horribly!!!! Check out the web site hersfoundation.org and read the horror stories of women who did this and a hysterectomy. God gave us our organs to function as needed not to be removed for a maybe cancer one day to suffer the horrible side effects the rest of your life!
WARNING TO ALL WOMEN THIS IS A MONEY MAKER FOR THE SURGEONS DO YOUR RESEARCH FOR ALTERNATIVES!
Jennifer..Your advice is a little strong. My wife had a tumor 20 years ago and because of her age the doctor removed all of 1 ovary and but left a small part of the other. Now she is in final stages of ovarian cancer that started on that small part he left. I can't say she wouldn't have got the disease in some other way, but I would have like to cut her odds by having removed them both back then. If the doctor recommends removal, get a second opinion; don't reject his advice.
Jennifer, you are so wrong. No one tried to talk me into a hysterectomy. I had fibroids, an ovarian growth and some other thing that affected my intestine. I had 3 doctors tell me it was up to me. I scheduled an appt with an OB/GYN oncology surgeon. He explained everything to me in detail, including doing it by laparoscopy, vaginally or by incision. He explained if I was on the table and they found cancer they would have to make an incision because he would never remove a cancer by laparoscope or vaginally. I posted something before this about someone I know who had a painful tumor on her ovary. They did hers by laparoscopy and they cut the tumor, spilling it into the cavity and it spread. She ended up having lung pieces removed, intestine pieces removed, 1/2 of her liver and 4 years later, she died a tragic and painful death.
Mine did not turn out to be cancer but I told the doctor, take it all! There is too much cancer in my family so get it out of there and he did. I was home for 6 weeks, I felt fine after that, never had a problem and its now 5 years later, I still don't have any problems. It was the best thing I ever did. I am monitored for bone loss and heart and many other things but everything so far is fine. I do not miss those terrible periods and my sex life, which I was worried about losing the desire for....is fantastic! So it is not a bad thing for everyone. All of us are different and have different bodies and reasons for doing things. Its all very personal.
When women's bodies and women's organs are treated with respect and all efforts are made to preserve them instead of remove them, then I will have respect for doctors.
Hysterectomy/castration is a big money maker for surgeons who perform it, doctors who clean up the mess, big pharma who prescribes HRT. The losers are women and their families.
For those who think I bitch too much, get over it. My life was RUINED! I have ditched the oncologist who butchered me, and after many doctors found one who is very up front and not deceitful. She took me back to her office and we had a very long discussion about what was done to me, that yes, this surgery is to blame for my current (and now life long) problems and there is nothing that can be done about it.
To any woman whose doctor suggests hysterectomy/castration please check out the HERS Foundation and get the facts.
And yes, I've seen people die of cancer. I've also seen people (my mother, my best friends, and my own child) die from stupid, money hungry doctors who did criminal things but are protected by standard of care laws.
I am so so sorry for you ....I thank God I got to the website hersfoundation.org before I was butchered. I will be praying for you... (my to be surgeon contacted her boss at Mayo and put me on the do not let her be a patient here anymore list!!!!!) just because I questioned her reasons to hysterectomize my body!!!! Thank God my husband backed me all the way and said run from that butcher!!!
It's very unfortunate so many of you have had such bad experiences. Always, Always get a second opinion!
I chose to have a total hysterectomy at the age of 27 due to endometriosis and ovulatory cysts I can honestly say I'm not sorry. I have had none of the awful side effects some women have. I did the hormome replacement for several years, but at 42 I no longer take hormones. The only real lasting side effect for me was the hot flashes. For me it was the best decision I could have made and I think that's what's important here is that everyone needs to make their choice based on their own values and lifestyle.
I just wanted to tell my story. I was diagnosed with breast cancer when I was 36 y/o, and a mother of a young child. For me, there was only one choice: removal of both breasts and whatever I had to do to survive. I also did get the genetic testing because I wanted my sisters and my family to know there risk as well. A year ago I also decided to get a complete hysterectomy. I am very happy with the decisions I made for me and my family. You are NEVER completely worry free of getting the cancer back, but I feel I made the right decisions for me. I did also go back to get bilateral reconstruction of my breasts. Although not the same, I am happy with the result. I also have a wonderful relationship with my boyfriend. He has accepted me with all my imperfections. Telling him about all this at first was scary...you never know how someone new is going to react. I just think this decision is one that is very personal to the person going through it, and you should do some soul searching before you plan any surgery. But, I am alive and healthy, and hopefully have many years to live! My plan is to play with my grandchildren in the future with my husband of 30 years!!!
As an R.N. working in surgery, I see operations all the time. The horror stories that people are telling are as individual to themselves as are the success stories. Therre is no "right " treatment for everyone.
Cancer treatment is making advances all the time. There are oncology programs that focus on chemo/radiation and holistic resources too. Not all physicians focus on cutting as a first or only choice. Doctor shopping to find a program that will treat your emotional needs as well as physical needs is a must. Unfortunately, these programs are not usually found in smaller communities or rural settings.
Some of the surgeons I have worked with over the years have the sensitivityof a rock. Others have the ability to empathize and nurture. The bottom line is, look around. You do not have to deal with the Bozo's of the medical world. There may be much better fits for you a phone call away. The same goes for your oncologist. They are actually the ones you will be spending the greatest amount of time with. They direct your whole post surgical experience and how you get what you need to be successful. Check out the Cancer Centers in the metropolitan areas as they are the models for holistic treatments.
Be as well informed as possible. Learn the right questions to ask and become your own advocate. Sometimes things come as a surprise to you but you still have time to explore the way you want to pursue treatment. There is not one treatment or answer to fit all.
What you say is correct. However, one day I was curious about what the training and abilities of a physician assistant are so I googled it. I found out there are about 30 different types of physcian assistants. Each one has it's own training and certification. This is just one type of medical position. There are dozens of different specialists and levels of specialists, and dozens of different types of technicians. Now, if each of them has dozens of different types of approvals, how on earth is anyone supposed to know who is trained to do what, let alone find out if they are good at it? To that, add the many schools of thought on treating each condition for the thousands of possible diagnoses. If you are not already a specialist in a certain area, you can't possible know if you are getting the best information about your problem. As they say, "You don't know what you don't know."
I think the medical community needs to get together and standardize at least the types of medical specialists, technicians, and levels of treatment authority. Or, could they please put out a handbook for us to refer to that explains what each certification means. i.e. what the education, experience, and other requirements are for getting certified?
The public can't be expected to be a medical specialist when that is not their field. I have to guess that even the medical professionals don't know a lot of this stuff. Moreover, try to go to doctor and tell them what you read in an attempt to question whether you are getting the complete information and the best treatment. They just roll their eyes at you and inform you of how uninformed you really are. Enough!
So sorry about what happened to your mom. My mom had her left breast removed because the doc told her it was necessary. Eight years later she succumbed to metastatic breast cancer and I helped her through her last year of life. Had my father ever mistreated my mom while she was terminal, there would have been hell to pay for him. In 2002, I was diagnosed with brca at the age of 50. I have a wonderful oncologist who put me on chemo that would not make me lose my hair, and thank God I didn't. He--yes--HE knew how much my beautiful long hair meant to me. The docs I had were into breast conservation as well. Just wondering--how'd the vodka and pruning sheers incident work out? That's a good one.
I am a survivor in a family of ovarian cancer deaths. I survived because I knew enough to keep an eye on mine. I had good physicians that had me doing Ultrasounds every 6 months. In addition I had a Fibroid Uterus. Not to burst anyone's bubbles, but when I finally got insurance approval for my surgical sterilization it was just in the knick of time. Nothing was Cancerous, but the pre cancerous changes had begun. For me, the surgery was a lifesaver. Oh, and the pain I had before surgery has never returned!
My mother-in-law and my Mom both recently died from ovarian cancer. This is no laughing matter. It is a horrible disease. If anything can decrease a person's risk and they choose that option, it's certainly not female "castration." That some women choose to do this is not the tragedy. Watching my family members die horrible deaths was the tragedy.
Deja vu! It's the nineteen-fifties all over. Another bunch of women-hating doctors are loose in the world ... !
Crotchety makes a good point. This is a time of regression thinking - and depression policies - in the US. They anti-life and anti-women forces in the US are having a heyday and American society is suffering for all of the resulting bad policy. There was a time it was said in jest, "the 1960(s) were good to him, to her." Now these 1960s radicals and potheads, and their 40 something follow-ons (with their own college era drug probelms and radical, anti-life, anti-person, anti-woman agendas) are making the rules and recommendations for the USA from seats of power in the Big Government, Big Medicine and Big Pharma teaming and America is deteriorating. Choose life. Follow your own counsel, not the media message. Vote out all incumbents in 2010. And 2012.
I too had borderline ovarian cancer at age 24 and had everything removed under anesthesia with no choice. I am 43 years old now. There are certainly pluses and minuses. Not having a period or mood swings are nice. I have not broken any bones yet but I do have osteoporosis. My sex life has been impacted because I have chosen not to take hormones orally. I do take estogen vaginally and that has helped tremendously. After the cancer I was grateful to be alive and I was grateful I had two babies that were going to have a mother. My boys are grown and I can not imagine their life without a mother. My surgeon was female and I remember going into surgery with her hand on my face saying it was going to be alright. I do not consider her a butcher. Doctors make the best decisions they can based on the information that is in front of them. I worry about the effect of no estrogen on my heart and my urinary tract. I also worry about broken bones. Every day I thank God that I was able to live. Others need to be grateful for what they have........
After the birth of my daughter in 1990 I had cervical dysplaysia. The dr used a procedure where he froze my cervix. I didn't go every six months like I should have. I started back in 1994. He started the cervical freezing again and I finally asked him after three times, how many more times before you do a hysterectomy? He checked around and ordered a cold cone biopsy. It detected a pre-cancerous cervix. They ordered surgery and when they went in, my uterus was cancerous. Had I not pushed the issue, I have no idea what would have happened to me. 15 years later I am still cancer free.
I wish doctors would stop lying to women about castration (yes removing the ovaries, female gonads, is castration) I lost both my ovaries because of a borderline ovarian tumor (a tumor that had a very low potential of becoming cancerous), and my uterus, and guess what? My life is a total Hell and I spend every day in pain, lost 3 inches off my height, and my life is awful.
Women, if some doctor says you need your ovaries removed LEAVE! These quacks don't know what they are talking about. It hasn't been proved that anything causes cancer other than bad luck. What happened to me while I was under anesthesia was criminal. Don't become another victim of misogynistic doctors.
I think that if some doctor said removal of the testicles would decrease the chance of prostate cancer in men that there would be a public outcry.
Thank's for your advice kolynna, I'm sorry you have suffered so much. You're right, removing a womans ovary is the equivalent of male castration. I have a large ovarian cyst and fibroid tumor and was told by a (female) gynecologist that I should have a hysterectomy, and a left salpingo oophorectomy, without EVER giving me any other alternative treatment options which I had to find online myself - like a cystectomy to remove the ovarian cyst and preserve my fertility by making every attempt possible to save my ovary or Uterine Fibroid Emobolization to destroy the fibroid tumors and leave my uterus intact. I thought if I went to a female doctor, she would be more compassionate and understanding of the fact that I don't want to lose any of my reproductive organs - boy was I wrong! There is an extremely small chance I have ovarian cancer and yet I can't find a doctor willing to do the less radical, out-patient laparascopy surgery. Two different doctors want to perform a laparotomy, which would put me in the hospital for at least three days and force me to take a month off of work, which I definately cannot afford. According to information I found online and at the library, some potential life-long consequences of ovary/uterus removal are: surgical menopause, increased risk of coronary heart disease, cardiovascular disease, acceleration of osteoporosis without hormone replacement therapy, changes is sex drive/sexual dysfunction, psychological difficulties, severe hormone imbalance and the risk of uncontrolled bleeding and organ/nerve injury during surgery. As far as I'm concerned, women should get ten different opinions if they have to, this surgery should not be taken lightly!
Kolynna - Sorry you have suffered so much but please DO NOT tell people to "LEAVE" if a doc advises them to remove their ovaries. A patient should ALWAYS get a second opinion! And, speaking only for myself, I'd rather be 3 inches shorter and deal with daily pain then have cancer and have to go through the ABSOLUTE HELL of chemo, radiation and possible surgeries.
so sorry kolynna.
I am sure lots of woman are now informed about the research, including me, Thanks you.
I had to remove one because of a grapefruitsize, cyst .
Hang in there. Izee
I'm sorry some of you have gone through a hard time after a hysterectomy. To Suzie, they might not want to do it by laparoscopy because it is easier to remove everything if they cut you. They might cut into what might be cancer and "spill" the cancer. They actually sliced her tumor and cells fell into the cavity. That happened to someone I know and she died when she was 56 years old just a couple of years ago.
I had a total hysterectomy at 51 years old. I am now 56 and it was the best thing I ever did. No more pain, no more terrible long periods and I am much more fit than before. Every woman I spoke to before I had the surgery said it was the best thing they ever did. My sister had it done at 39 and she is now 64 and doing fine. Its not as bad as they make it out to be.
You can still get ovarian cancer in the lining of your stomach. Very rare though.
Suzie, I hope you get to have all the babies you want. Shortly after my son was born, 19 years ago, I began having very heavy and painful periods. The flow was so bad that I thought I might lose my job for spending too much time in the bathroom on the first few days of my period. The pain was very severe and the flow so heavy there were clots the size of golf balls. My doctor convinced me to have my uterus taken out. After all those years of 10 day long periods, I felt so free. I've read that when a woman has her uterus taken out she doesn't enjoy sex as much. That's so not true! I do still have my ovaries so I have plenty of drive. My husband and I don't need to use any birthcontrol. How great is that!
I had a hysterectomy and had my ovaries removed 5 years ago. Like Woodyspond said, IT WAS THE BEST THING I'VE EVER DONE!!! That monthly problem became weekly and was running my life. I also had 3 hip replacements 10 years ago. The hip problems ruined MY life. I struggle to walk short distances because the first doctor had very minimal surgical skills. When he put me back together after detaching my femur from my pelvis, I was deformed. I found another doctor who gave me back a reasonable life. I used to be a very capable person, now I just get by thanks to hip replacement surgery. I hate to start anything, because I'll usually run into some problem that'll prevent me from finishing - especially if I have to keep getting up to get something. Everything just takes longer. So, of course, I was scared about the hysterectomy, but one week afterward I was a happy camper! If I could, I'd be tap dancing now thinking about how much better off I am now in that regard, at least. If you need a hysterectomy and don't want any more children, I will certainly support that. It's a walk in the park compared to hip surgery.
I sure wish I had insurance and could afford follow-up screening for either one of my problems. I had severe abdominal pain a few years ago and had an MRI. They charged me $5,000 for the MRI alone, plus another $3,000 for the other services performed. I won't go back. That was a trumped up charge. If you have insurance, the insurance company only has to pay $2,000 for those procedures. That's where the medical industry gets criminal - triple charging uninsured people who are unemployed and broke - kicking you when you're down. With the exception of a few good ones, many of them are greedy and heartless.
Amen! My heart goes out to you<3
kolynna,
Obviously you've had to endure a terrible experience, and I'm very sorry for that. However, it is irresponsible to tell women they should ignore a doctor who tells them to remove their ovaries. In 2001, doctors found cysts on my mothers left ovary, and recommended removing both. She decided to go against their recommendation and only had the 1 removed. Then in 2006, she was diagnosed with ovarian cancer (stage IIIC), and had to have a hysterectomy, as well as an appendectomy because the cancer had spread.
Luckily, because of an experimental treatment and wonderful doctors, my mom is still with us. But unfortunately most women with that stage of ovarian cancer are not nearly as lucky. My mom made a decision years ago that could have cost her her life. Now I'm not saying that all women should have their ovaries removed at the first sign of a problem, I'm just saying that everyone should get all of the information they can before making such an important decision.
A relative of mine had a complete hysterectomy at the age of 45. She died of ovarian cancer at 64. Apparently, it didn't help her to have her ovaries and uterus removed....
It is impossible to judge whether it helped her or not without more facts. But if there was cancer or pre-cancer that caused her doctors to recommend that surgery, it may well have helped as she lived another 19 years after her surgery. I have known young women, sometimes with young children, who died of deadly forms of breast and ovarian cancer that were not caught in time (sometimes because the woman with symptoms decided not to seek help until it was too late). Sure, prophylactic removal is an idea for which each at risk woman must evaluate what she fears most (the surgery or a higher risk of cancer). But I know women with bad family histories who have set themselves free with the prophylactic surgeries and have no medical complicatioins.
I had a complete hystercetomy in 2008 for cervical cancer. I also have a strong history of breast cancer in my family. I'm very happy that my risks are lowered. I realize that some people have negative results from their srgery, but that hasn't been my experience. Don't warn all women against a potentially life saving surgery because you had a problematic outcome. Many of us are leading completely normal lives after our surgery. Every woman should weigh their options and make their own decisions. One anecdotal experience does not paint the whole picture. And to paint doctors as misogunistic is unfair. These are results of a scientific study, not some creepy doctor who hates women. Get a grip.
AMEN!!!!
Double Amen! I too have had my ovaries removed due to cancer and have NO regrets. My life is very much as it was before.
I'm sorry that you are suffering, but it is irresponsible to say that ovaries should never be removed. Drs hate women so they are taking out ovaries left and right? Get real.
It's up to each woman to do research and get as multiple opinions when facing any kind of surgery. But sometimes it is necessary.
I had a complete hysterectomy at the age of 53 now i am 77 year old,,,,so far so good I never had any problem,,,sorry to hear you had a bad experience..we don't have the same reaction to that....some are o.k. some are not....
I had a complete hysterectomy at 45. Best thing I ever did. I had lost so much blood from having extremely heavy periods ever month that I was anemic. Also, my hormones were all screwed up from the cysts and caused a nervous breakdown and I developed OCD. Now I can think straight and I am feeling great! Never felt better! Went thru menopause with very little problems. Did not and do not now take hormones. Suffered thru the hot flashes and now avoid things or limit things like carbs and alcohal that can bring them on. I haven't lost any height and have no problems. Now I am dieting, excersing and losing weight and I feel great.
Always get a second opinion!
Women should never think taking anything out of their bodies is a good idea and definitely not perfectly good ovaries. It is ridiculous to ever remove a part of the body unless absolutely necessary. Shame on this type stupidity. Going right into menopause is not so wonderful when you are in your 20s, 30s or 40s. Let your body do what it is supposed to and keep those lovely ovaries.
I watched my mother die from ovarian cancer when she was 56. I vowed then that when I was finished having my family, my ovaries would go! When I was 53, I had a complete hysterectomy and I have never regretted it. I was starting menopause anyway and had no plans to have more children (and would have been too old then at any rate). I have lost some height, but I have a scan done regularly to check for osteoporosis and "so far, so good". All you have to do is watch somebody die from ovarian (or breast) cancer to know that this was not a route you want to take. My mom ended up with a colostomy and months of pain and suffering before she finally succumbed to the disease. She went from being a vibrant "young" woman to a zonked out "skeleton" in months after three surgeries. She was kept comfortable with a morphine drip which just snowed her under and deprived her of any meaningful existence for the last few months of her life. Make your own choice, but removing my ovaries was the right choice for me.
I had a total hysterectomy at age 27 due to ovarian cysts that had already claimed one ovary. I took HRT off and on for several years but stopped at age 55, when most women lose their ovarian function anyway..I am now 59. So far the only problem I've had is a dx of osteoporosis and 3 fractures, wrist, rib, and foot, all 15 or more years ago and I've lost 1/2 inch in height. My mother who is 85 also has osteoporosis and she did NOT have a hyterectomy....I take 1500 mg calcium w/ phosphorus and magnesium and 5,000 IU of Vit D daily. I also am very active and do lots of weight bearing exercise.
I meant to add...get that second opinion from a gynecological oncologist or specialist in the area of concern.
When my mother was diagnosed with breast cancer, my dad (a doctor) said that my sisters and I should just have our breasts "cut off". "They are just mounds of fat and unless you're going to breast feed for the rest of your life, you don't need them. They don't serve any real purpose." Yeah, sure, and guys buy playboy for all the fantastic literature! My response to him was that we had all voted and decided that he didn't need his testicles anymore (since he wasn't going to father anymore children, they don't really serve a purpose). So, if he'd be so kind as to meet us out back with the pruning shears and a fifth of vodka (have to sterilize the shears some how). :-S
My mother was treated like a piece of meat. Her breasts were just treated as garbage (parts are parts, as Dad used to say). The whole thing (surgery, treatment, and even her death) was horrible. She was severely mistreated by those who were supposed to help her. I told my husband that this type of treatment would never be allowed (if I were to become such a patient). I go into surgery with breasts, I come out of surgery with breasts (removal and reconstruction - same bat time, same bat channel). They must look natural and I must be able to feel it when my husband touches me. That's the rule for my body. There will be no showing up for an appointment on time (or early to fill out paper work) and having to wait 3 hours for the doctor to show up (only to be told that I would have to reschedule). Who's time is more valuable, the doctor or the person with the potentially fatal disease?!? I can't tell you how many times it happened to my mother. At one point, I sent the Dr's office a bill for the time that they had wasted (if you didn't show for your appointment or canceled at the last minute you would get a bill). They laughed in our faces at that. I have no respect for those who treat cancer patients with so little respect.
JW-421212, I am so sorry to hear about the horrible way your mother was treated, and your dads' insensitivity to you and your sisters. My mom died of colon cancer, and my dad took such loving care of her for the two years she was sick. I wish your mom could've had the same treatment. It sounds like you have a loving relationship with your husband though, so I am happy for you about that. God Bless You!
JW -- I hope your life works out for you based on your demands. Maybe it will. But some women with a strong family history of breast cancer get it themselves, and others want to do what they can to prevent it. Your father, who was losing his wife (and it sounds like he'd have rather had her without her breasts than to lose her) may have known something about your and your sisters' risk factors and not wanted to lose you, too. Again, your story doesn't contain enough facts to judge, but for some women with a family history the risk is high.
I had breast cancer at age 52 and have been blessed with a wonderful caring oncologist. I wouldn't say that he never keeps me waiting, but when he gets to me I have his full attention, and always have had. He devised a chemo protocol based on the best science at the time because he wanted me to live, and he was very concerned about anticipating and preventing side effects. I did not have the other breast removed despite a high risk of eventually having a "mirror image" cancer in the other breast. But I do have mammograms and MRIs every year, plus tests for ovarian cancer. Since I've gone through the choice of whether to do preventive surgery, I can truly understand why some women would make that choice. A year ago something funny showed up on my breast MRI in the mirror image location so I had to have an MRI-guided biopsy, which fortunately was benign but it was very unpleasant, and the worry until it was over were dreadful. I made the right choice for me, not to have prophylactic surgery, and guarded watchfulness -- coupled with a constant worry of it returning in the back of my mind -- is simply part of the consequences of tha choice. I would never judge a woman who wants to cut her risk of having to go through with that by having prophylactic surgery.
And as to doctor waiting times, the best doctors are often busy, and cannot control whether they have unexpected emergencies. If you want a good doctor, you have to take him or her as they are, and if you can't accept their style you should find a doctor with different priorities. One of my doctors is frequently running 2-3 hours behind schedule because he is good, and in demand, and he takes the time with his patients when necessary. People in his waiting room form support groups waiting for their appointments. :) But I know the office runs late, and I know I want that doctor because he's wonderful and he'll give me extra time when I need it, so I take work to do while I wait. Don't assume that good doctors can make their practices and the needs of their other patients run on schedule so that you never have to wait.
Sounds like you had some bad experiences, but I don't quite know why you are so angry at your father. It sounds like he has his priorities straight to me! Seems he cared more about a woman's life and health than whether she looks like a playboy model! Maybe you need to find a man who cherishes you for who you are and not your body parts that are, after all just body parts, which have no bearing on who you are as a person! As a woman facing the possibility of reducing my breasts, I am greatful to finally have a man who supports me and could care less whether I have breasts or not! He would rather that I be healthy and not in pain than looking like I should be working at Hooters!
While I understand that you had bad experiences, which is too bad,... maybe you need to give your father a break. Maybe he recognizes that a woman is worth more than her body parts!
It is sad that some people have genetic issues that cause cancer, especially BRAC. If you are at risk, male or female, and you enjoy your life, I would highly recommend that you take whatever action is neccessary to understand what your options are and always get a second opinion. Unfortunately, the BRAC gene is real....real deadly, especially when it appears in the ovaries, and is not caught early. My lovely wife was lucky to have had it discovered when it was still at stage 1. After removal of both ovaries, she had a 90% chance that she would never get it again. Well, she was one of the unlucky 10%. She has had two reoccurences. Life is good, but always looking around the corner. Her two sisters also had the BRAC gene, removed everything, and no cancer! So, don't be ignorant, know your body, take care of it and get it checked regularly, especially if you are in a high risk category.
My mother died of ovarian cancer at 79.....she had a partial hysterectomy when she was 39. My Dad, my sisters and I cared for my Mom for 2 years after her surgery and through the horrible chemo therapy she had to go through. Finally, she died at home; hospice helped us in her last days. I had a partial hysterectomy at age 40 (prior to my Mom's cancer); I'm now 57. Each year I get a CA125 test and an ultrsound of my ovaries, but it still scares me that ovarian cancer may occur for me. Mammograms annually are a must too!
I lost my mother to ovarian cancer in March of this year. She has a partial hysterectomy years ago, but for some reason her ovaries were not removed. She was diagnosed in May of 08 with ovarian cancer, had surgery and then chemo and was doing well, until last fall when her CA125 started climbing. She went back for more chemo which helped at first, but then again her numbers started climbing and at the end of January they told her there was nothing else they could do although she would have tried anything. She died at my house also under hospice care. I am 47 and have had the CA125 test for the past two years and my doctor said if there is any significant change, she would recommend having my ovaries removed. I have a 16 year old and 15 year old and want to see them get married and have children of their own, plus the fact that I don't want them to have to take care of me and see me suffer like my mother did. It was a slow, horrible and painful death that I wouldn't wish on my worse enemy.
Five years ago (at age 49) I had a large "precancerous" tumor removed, along with my ovaries and uterus and cervix. Although I had complications right after the surgery (necessitating a 2nd sugery, as well as 8 days in the hospital), I can honestly say it was the best thing that could have happened. I had had problems on and off for about 5 years prior, and those were GONE. I do take HRT, have since the day of my surgery, and have had NO problems with it. I exercise (cardio as well as weight bearing), never gained weight, didn't lose any height. And I DID have a 2nd opinion.
Hi mom of four,
Wow your story sounds just like my moms. She Had everything removed for the same reason at age 50 and is now almost 70. No bone loss and a very healthy heart.
Reading this article, it was like reading a synthesis of the different doctors appointments my wife and I have had over the course of the last six or seven years. My wife carries the BRCA2 gene, linked directly to ovarian and breast cancers in women, and prostate and possibly colon cancer in men. Her father died of prostate cancer in 2008 and three of her six aunts have had breast cancer, two have had colon cancer, and ovarian problems are rife on her father's side. My wife is 29 now and, following a second operation to remove suspicious cysts in and around her left ovary, they decided, given the circumstances, to remove it, announcing (once again) that they should probably do the same thing for the other side by the time she turns 40. We're definitely on board given her family's health history. As for prophylactic surgery for breast cancer, my wife doesn't think it's the best option for her. But, again, that issue is a very personal one.
My question to the person railing about losing height and likewise having all sorts of other health issues is this: would you rather be dead? Honestly. Give the doctors a break; they aren't miracle workers who can cure any ailment simply with a swipe of the scalpel. They are guided by the best scientific clues available to them. Unfortunately, side effects are common for just about any invasive procedure. I'd say count your blessings. Have you ever seen someone die of ovarian cancer? We've known three women, two of whom were somewhat close to the family. It wasn't pretty.
Of course, you should always get a second opinion. My wife has about ten doctors who work with her on a regular basis and they all share information after each appointment. But if we're not satisfied with an answer, we can always find somebody else to see us interim.
Good luck to everyone here.
Andy
AMEN ANDY!!!! I hope that your wife is doing well. She's very lucky to have a husband like you who is willing to fight for her decision. :0)
To CutTheCarb;
cut the crap. Your video link was full of dangerously misleading fallacies. Cancer rates are "lower" in olden times and in "traditional" societies because life expectancies were dramatically shorter and an unknowable percentage of those people who die quietly of "natural causes" in some hut somewhere at the age of 52 are in fact dying of undiagnosed, untreated cancer. Because it was never diagnosed (specifically b/c they have no access to a doctor who can diagnose it), it never makes it into the statistics and thus the recorded rate of cancer in historical times and in third world settings is incredibly inaccurate. Even in our own country's relatively short history, causes of death have been officially recorded as everything from evil spirits to masturbation--we will never know how many people died of cancer. Life expectancies stayed fairly steadily low throughout history until modern medicine hit the scene and now it has almost doubled in the past hundred fifty years. I know that's inconvenient for the crowd that wants people to think that life was all peaches and roses in stone-age societies that relied on "holistic medicine" and hunter-gatherer diets.
No internet fad diet can cure or prevent cancer. Period. This online junk literally gets people killed. People who are sick, desperate and scientifically illiterate find this kind of stuff online and then go against medical advice, possibly risking their lives. I knew a person whose mother had advanced cancer but would not see a doctor. Instead she insisted on giving herself very dangerous coffee enemas because she read about that as a natural cure online--boy did she outsmart "the system"! She smirked about the evils of western medicine all the way to her coffin unfortunately. I'm a vet. Every single week I have patients who have been badly injured because their idiot owner found some kind of fad "cure" for something online then comes into my office simultaneously desperate for me to save the day while being openly hostile towards advanced western science/medicine. The latest happened to be a very sick dog whose owner had found some "holistic" cure for her dog's GI problems that involved feeding their dog grapes (which are toxic for dogs). She was convinced that toxins in the dog's colon had to be naturally cleansed using some special diet that some quack posted on an internet site somewhere (similar to Cut the Carbs btw). I had to argue with the owner for a long while--she was adamant that since grapes were natural they couldn't be toxic whereas tests I needed to do and medicines I needed to prescribe were somehow poison....she left in a huff, smirking about how stupid I must be and saying she needed to see her herbalist about this....she pushed the dog from mild constipation into acute renal failure b/c of something she read online and I'M the stupid one??? I guess people who irrationally trust their lives to internet quackery deserve what they get, but it saddens me when pets and children are harmed by those idiots' decisions.
To the people suffering with tough choices involving cancer: PLEASE seek fully accredited medical care and get second opinions. Find a doctor who will help you get the information you need and who makes you feel "heard". And PLEASE do not think home internet "research" is a substitute for the years and years of intense training each of your doctors has gone through or the decades of well-funded large-scale clinical trials and research that have been published. Dr. GOOGLE is not your friend!!! The "natural" supplements industry is completely and totally unregulated and has virtually no scientific research behind it. There is nothing good/holistic/superior about hucksters selling stupid ideas and unregulated bottles of god-knows-what to sick people. It's evil.
I don't understand how removing ovaries equals castration. Wouldn't removing your vagina and/or clitorus equal castration?
check out and educate yourself at hersfoundation.org you will learn why and how there.
Don't know if anyone else has explained this, but... during gestation, when your sex is determined - if you are to become a boy, your "ovaries" are your testicles... and if you become a girl... then vice versa. If you were a boy and your testicles were cut off, that would be castration... therefore, removing your ovaries is female castration.
I, too, fought with doctors for years who wanted to perform a hysterectomy on me because I had fibroids. There was nothing else wrong with me and I was in no pain. I got THREE opinions - including a doctor who, after I told him what I had been through, told me "Some people are not comfortable having some people as their doctors... I am not comfortable having YOU as my patient." (and yes, that is a quote) Not sure what it was I told him that made him say this - except that I did not want to have a hysterectomy over some fibroids when there was nothing else wrong with me. That went on for years till I finally found a doctor who would listen to me. He knew a lot about alternative medicine and never ever pushed me to have a hysterectomy.
In the long term, I fully believe waiting saved my life. I developed Non-Hodgkins Lymphoma in 2001 just before my 50th birthday. As a result of this I did have to have surgery which removed 2 tumors, 12" of my small intestine, and all my female organs. However, because of the fibroid which needed a large blood supply, and cancer being a blood borne disease, the only organs (or other parts) in my body which were affected by the cancer were my female organs (which I could afford to lose under these circumstances). So telling those other doctors "No" in the end, saved my life and made my cure from cancer easier. I am now 8 years out from finishing chemo and my oncologist has pronounced me "cured".
However, having the hysterectomy did have a lasting effect on me and if the choice hadn't been taken away by the cancer I still wouldn't have one unless there was no other way. It is a known fact most doctors (OB/GYN) are looking for an easy way out for them - not their patients. I saw this during my time when I was fighting to keep my female organs. It is easier for them to have you go thru the surgery. It is not necessarily better for you. I question this study because it is vague (read the article again and you will see what I mean). It clearly states "The study was observational, meaning it can't prove one choice was better than another. Other factors could have caused differences in the women's cancer rates." So what I get out of this is doctors are looking for a way to prove to women what the doctors want is not necessarily in a woman's best interests. For that reason I tend to agree with the person who told women to "run" if they are told to remove their healthy ovaries. I would at least try to find a doctor who will listen and not be patronizing. OB/GYN's are developing a notoriety for an over abundance of surgeries that are not necessary. Look at the rise in C-sections. Most of them unnecessary, but the Dr's do not want to have to get up in the middle of the night or miss their golf games. It is ridiculous. And yes, if this were happening to men, there would be an outcry.
I think the other women (and myself) are just trying to say... do not always believe EVERYTHING your Doctor tells you if you feel it is not in your best interest. Read, be informed, even if it means a doctor has to tell you he "doesn't feel comfortable with you as his patient". That is a red flag. Heed it. And the person who suggested going to the Hers Foundation website was definitely "right on the money". Do it. It is enlightening when it comes to female health.
The testicles in men produce testosterone. Ovaries in women produce Estrogen. Testosterone in men makes them grow body hair, have deeper voices, stronger muscles and bones and creates sex drive. Estrogen in women makes them develop breasts and hips. It protects their hearts and bones and allows them to menstruate, conceive and carry a baby.
Take either away, it can cause many problems. Some people never notice the missing hormones.
I'm sorry so many of you have had such horrific experiences with cancer diagnoses and treatments.
I am almost 45 yrs. old and since the age of 32, I have been a volunteer in a research study (University of Kentucky) to determine the possible genetic links associated with ovarian cancer. Both my aunts (maternal) have survived ovarian cancer and the related women on that side of our family also participate in the study as we are naturally concerned about one day developing cancer.
I plan to have the BRCA test and if I possess the genetic mutation, I will happily "donate" my ovaries, especially if doing so will prolong my otherwise very happy, healthy life.
While it's possible that our enthusiasm is premature , I find medical progress of this nature to be positive and encouraging.
I was diag with stage 3 breast cancer at the age of 27.. My doctor has not removed my ovaries, but I do get a shot of zoladex every three months to surpress them. I am 8yrs free of cancer. I also had both my breast removed and had reconstruction. I am very happy with my results and my treatment. I do not feel like I was mutilated, and dont miss my breast at all :) My daughter will get tested for the gene when she get older and I as her mother and a survivor would rather she remove her ovarys and breast. Life is so much more precious than your parts of your body that could eventually kill you!!!
This is the biggest LIE ever more money for surgeons! While the women suffer horribly!!!! Check out the web site hersfoundation.org and read the horror stories of women who did this and a hysterectomy. God gave us our organs to function as needed not to be removed for a maybe cancer one day to suffer the horrible side effects the rest of your life!
WARNING TO ALL WOMEN THIS IS A MONEY MAKER FOR THE SURGEONS DO YOUR RESEARCH FOR ALTERNATIVES!
Jennifer..Your advice is a little strong. My wife had a tumor 20 years ago and because of her age the doctor removed all of 1 ovary and but left a small part of the other. Now she is in final stages of ovarian cancer that started on that small part he left. I can't say she wouldn't have got the disease in some other way, but I would have like to cut her odds by having removed them both back then. If the doctor recommends removal, get a second opinion; don't reject his advice.
Jennifer, you are so wrong. No one tried to talk me into a hysterectomy. I had fibroids, an ovarian growth and some other thing that affected my intestine. I had 3 doctors tell me it was up to me. I scheduled an appt with an OB/GYN oncology surgeon. He explained everything to me in detail, including doing it by laparoscopy, vaginally or by incision. He explained if I was on the table and they found cancer they would have to make an incision because he would never remove a cancer by laparoscope or vaginally. I posted something before this about someone I know who had a painful tumor on her ovary. They did hers by laparoscopy and they cut the tumor, spilling it into the cavity and it spread. She ended up having lung pieces removed, intestine pieces removed, 1/2 of her liver and 4 years later, she died a tragic and painful death.
Mine did not turn out to be cancer but I told the doctor, take it all! There is too much cancer in my family so get it out of there and he did. I was home for 6 weeks, I felt fine after that, never had a problem and its now 5 years later, I still don't have any problems. It was the best thing I ever did. I am monitored for bone loss and heart and many other things but everything so far is fine. I do not miss those terrible periods and my sex life, which I was worried about losing the desire for....is fantastic! So it is not a bad thing for everyone. All of us are different and have different bodies and reasons for doing things. Its all very personal.
When women's bodies and women's organs are treated with respect and all efforts are made to preserve them instead of remove them, then I will have respect for doctors.
Hysterectomy/castration is a big money maker for surgeons who perform it, doctors who clean up the mess, big pharma who prescribes HRT. The losers are women and their families.
For those who think I bitch too much, get over it. My life was RUINED! I have ditched the oncologist who butchered me, and after many doctors found one who is very up front and not deceitful. She took me back to her office and we had a very long discussion about what was done to me, that yes, this surgery is to blame for my current (and now life long) problems and there is nothing that can be done about it.
To any woman whose doctor suggests hysterectomy/castration please check out the HERS Foundation and get the facts.
And yes, I've seen people die of cancer. I've also seen people (my mother, my best friends, and my own child) die from stupid, money hungry doctors who did criminal things but are protected by standard of care laws.
Would I rather be dead?
Would you like to switch places with me pal?
I am so so sorry for you ....I thank God I got to the website hersfoundation.org before I was butchered. I will be praying for you... (my to be surgeon contacted her boss at Mayo and put me on the do not let her be a patient here anymore list!!!!!) just because I questioned her reasons to hysterectomize my body!!!! Thank God my husband backed me all the way and said run from that butcher!!!
It's very unfortunate so many of you have had such bad experiences. Always, Always get a second opinion!
I chose to have a total hysterectomy at the age of 27 due to endometriosis and ovulatory cysts I can honestly say I'm not sorry. I have had none of the awful side effects some women have. I did the hormome replacement for several years, but at 42 I no longer take hormones. The only real lasting side effect for me was the hot flashes. For me it was the best decision I could have made and I think that's what's important here is that everyone needs to make their choice based on their own values and lifestyle.
Just be informed!
I just wanted to tell my story. I was diagnosed with breast cancer when I was 36 y/o, and a mother of a young child. For me, there was only one choice: removal of both breasts and whatever I had to do to survive. I also did get the genetic testing because I wanted my sisters and my family to know there risk as well. A year ago I also decided to get a complete hysterectomy. I am very happy with the decisions I made for me and my family. You are NEVER completely worry free of getting the cancer back, but I feel I made the right decisions for me. I did also go back to get bilateral reconstruction of my breasts. Although not the same, I am happy with the result. I also have a wonderful relationship with my boyfriend. He has accepted me with all my imperfections. Telling him about all this at first was scary...you never know how someone new is going to react. I just think this decision is one that is very personal to the person going through it, and you should do some soul searching before you plan any surgery. But, I am alive and healthy, and hopefully have many years to live! My plan is to play with my grandchildren in the future with my husband of 30 years!!!
As an R.N. working in surgery, I see operations all the time. The horror stories that people are telling are as individual to themselves as are the success stories. Therre is no "right " treatment for everyone.
Cancer treatment is making advances all the time. There are oncology programs that focus on chemo/radiation and holistic resources too. Not all physicians focus on cutting as a first or only choice. Doctor shopping to find a program that will treat your emotional needs as well as physical needs is a must. Unfortunately, these programs are not usually found in smaller communities or rural settings.
Some of the surgeons I have worked with over the years have the sensitivityof a rock. Others have the ability to empathize and nurture. The bottom line is, look around. You do not have to deal with the Bozo's of the medical world. There may be much better fits for you a phone call away. The same goes for your oncologist. They are actually the ones you will be spending the greatest amount of time with. They direct your whole post surgical experience and how you get what you need to be successful. Check out the Cancer Centers in the metropolitan areas as they are the models for holistic treatments.
Be as well informed as possible. Learn the right questions to ask and become your own advocate. Sometimes things come as a surprise to you but you still have time to explore the way you want to pursue treatment. There is not one treatment or answer to fit all.
What you say is correct. However, one day I was curious about what the training and abilities of a physician assistant are so I googled it. I found out there are about 30 different types of physcian assistants. Each one has it's own training and certification. This is just one type of medical position. There are dozens of different specialists and levels of specialists, and dozens of different types of technicians. Now, if each of them has dozens of different types of approvals, how on earth is anyone supposed to know who is trained to do what, let alone find out if they are good at it? To that, add the many schools of thought on treating each condition for the thousands of possible diagnoses. If you are not already a specialist in a certain area, you can't possible know if you are getting the best information about your problem. As they say, "You don't know what you don't know."
I think the medical community needs to get together and standardize at least the types of medical specialists, technicians, and levels of treatment authority. Or, could they please put out a handbook for us to refer to that explains what each certification means. i.e. what the education, experience, and other requirements are for getting certified?
The public can't be expected to be a medical specialist when that is not their field. I have to guess that even the medical professionals don't know a lot of this stuff. Moreover, try to go to doctor and tell them what you read in an attempt to question whether you are getting the complete information and the best treatment. They just roll their eyes at you and inform you of how uninformed you really are. Enough!
So sorry about what happened to your mom. My mom had her left breast removed because the doc told her it was necessary. Eight years later she succumbed to metastatic breast cancer and I helped her through her last year of life. Had my father ever mistreated my mom while she was terminal, there would have been hell to pay for him. In 2002, I was diagnosed with brca at the age of 50. I have a wonderful oncologist who put me on chemo that would not make me lose my hair, and thank God I didn't. He--yes--HE knew how much my beautiful long hair meant to me. The docs I had were into breast conservation as well. Just wondering--how'd the vodka and pruning sheers incident work out? That's a good one.
I am a survivor in a family of ovarian cancer deaths. I survived because I knew enough to keep an eye on mine. I had good physicians that had me doing Ultrasounds every 6 months. In addition I had a Fibroid Uterus. Not to burst anyone's bubbles, but when I finally got insurance approval for my surgical sterilization it was just in the knick of time. Nothing was Cancerous, but the pre cancerous changes had begun. For me, the surgery was a lifesaver. Oh, and the pain I had before surgery has never returned!
My mother-in-law and my Mom both recently died from ovarian cancer. This is no laughing matter. It is a horrible disease. If anything can decrease a person's risk and they choose that option, it's certainly not female "castration." That some women choose to do this is not the tragedy. Watching my family members die horrible deaths was the tragedy.